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Dude, I can’t even demand my health care insurance cover anesthesia for a procedure. Demanding anything from the government or a corporation is absolutely pointless at the moment.
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I’m still pissed the email I had managed to keep junk free for years was leaked because my insurance company had a breach.
Simplelogin/anonaddy
That having been said, keeping an email “private” is roughly as silly as people who think phone numbers are private, as if the white pages never existed.
But does your medical clinic do? Does your therapist do? Does your family member…
Surprisingly, yes. Though they’re not happy with it, for various reasons. But it was refreshing to rant to my therapist about snap, apt and systemd and have them truly understand me.
Does your company/school provide employee/student Microsoft 365 licences? Ask your Windows-using colleague to check that “Optional Connected Experiences” are enabled and tell the IT team that they are likely allowing genAI training on internal documents (Microsoft seems to have reserved the right to do that and never denied the allegations). Yes, they can disable this organization-wide and will likely contact Microsoft over this, and if enough of us do this they’ll know they crossed a line.
If your company’s IT team does not respond, you’ll have another argument getting your peers over to LibreOffice.
got ‘Hogwarts Legacy’ for $17 on a sale ($60 normally) and after starting it up I got put on a shader caching screen for literally 10 minutes It instantly put me on a screen that forced me to go to some 3rd party website to enter my email and IRL location for them to delete my data if they had it, BUT IT DIDN’T EVEN WORK. It showed an error message!!
Then it gave me literally 15 customizeable items I don’t care about then after literally 20 minutes of playtime IT CRASHED.
… what?
Karma, I’d say
i use linux and don’t have family or friends or get any kind of medical care ☺️ checkmate
Using Linux in America be like
The failures of the United States healthcare system are compatible with the Unix philosophy due to its emphasis on doing one thing poorly and leaving the rest for the user to figure out. Like Unix tools, each component—insurance, billing, and treatment—functions independently, refusing to communicate effectively while relying on the user to “pipe” themselves between endless calls, paperwork, and escalating bills. Debugging your health, much like debugging code, requires advanced knowledge, infinite patience, and a willingness to accept that nothing will ever be fully resolved.
So that’s why they named it Wine.
This very succinctly explains why I, with AuDHD, find it practically impossible to get anything done as I slowly rot from untreated chronic illnesses.
Audhd?
Gold deficit hyperactivity disorder.
Getting stressed AF when you don’t have money.
Autism + ADHD
And most servers do too.
God save ASP and .NET applications
On a side note, I don’t discuss anything with gmail users that I don’t want indexed and stored in Google’s dossier of me.
I hate to say this, but PRIVACY IS DEAD… Atleast online… Unless, you are an IT expert and been using VPNs since 2001.
it died a long time ago
Don’t forget with the Recall feature, you may be on Linux and are using a secure communication application, but if who you are talking to is on windows your conversation can be scraped.
Same thing with email. It’s all well and good if you’re using ProtonMail or Tuta or Posteo, but you’re still cooked if the other side is using Gmail.
Old problems, new modi operandi.
You can send self destructing messages with Protonmail
Do Proton remotely erase the message on the recipient’s email server? Even if it’s not a protonmail server?
They burn down the datacenter if they are not deleted in time.
Someone correct me if I’m wrong because I don’t know how proton works on this. These type of things usually don’t send the protected content in the email to the recipient’s server, they just send a link that the recipient opens and it’s all still kept on the private service’s server.
Good morning, Mr. Phelps.
It’s not like companies that use Linux don’t get breached either. Your personal data is in thousands of databases that have varying levels of security. Personal choices don’t affect any of that, regulations like GDPR are what’s needed.
getting breached is different from using spyware.
this goes for pretty much every single chat app out there. most of the popular ones are proprietary and go through private servers.
privacy is important kids.
So it’s not enough to brag about being on Linux ourselves, we should be encouraging our friends to switch to Linux as well?
How’s this different from someone just record your call? The thing you are worrying about has been possible long before Recall is a thing.
Until there is serious consequences to data breaches and criminal charges it doesn’t matter. It’s been a free for all for a long time the best we can do is simply keep using products or services that respect your privacy and discourage or not use services.
Yeah, our response to the Equifax breach was the end of data privacy. Oh, you lost literally all of the data for all of the adults in the US that you have been tracking without consent? All good, don’t worry.
Really, the response should have been the FBI taking all of their equipment, figuring out exactly what was stolen, notifying all the victims, then formatting and shredding all the equipment and sending Equifax a bill, on top of a huge fine.
privacy is scary stuff if you think. it’s like, i care so i dont share my phone number with facebook, but someone out there may have my number/address/name on their contact list and chances are big that they have no problem sharing with zuck. so i’ll still end up on zuck’s database.
My dad did that. The man has a slight obsession with collecting information about our entire extended family, as far back as he can go in time. He’s been known to get in touch with small municipalities to ask for their records about someone 8 generations back. He’s collated quite a bit of data over the years.
And then one day he went and loaded all of that into a shitty mobile family tree app. Phone numbers, current addresses, email addresses, photos, a shit ton of personal information of a shit ton of people, uploaded to some random developer’s unknown database without their consent. He didn’t even pause to think about it for one second. I told him what he did, he wasn’t even bothered.
There are tons of people like my dad who don’t have a single cell in their entire bodies that gives a flying fuck about data privacy, unfortunately, and they give out everyone’s data along with their own.
I just activated my checking account with PayPal and one of the questions from the verification battery was asking me which email I recognized. They were different domains of my mother’s ISP email that she uses only with Amazon.
I had the urge to answer incorrectly as if that would remove their association.
What drives me nuts about this subject is rarely spoken about.
No single company can properly compensate all of their users for the damages caused by mishandling their personal data.
In fact the damages may even be too great for the government to properly compensate said users.
No single company can properly compensate all of their users for the damages caused by mishandling their personal data.
What do you mean? Every time I’ve been involved in a data leak, I got offered 6 months of identity monitoring. What more could you want?
My government forces a fingerprint on our id cards. I already lost. I can’t use my fingerprint anywhere for authentication because it’s not mine anymore.
All your fingers, or just one?
But does your medical clinic do?
No, they don’t, and it pisses me off. Every time I see it, I think, Well, there goes my medical privacy.
But where else can I go? There’s only one health company in town, and they bought all the doctor’s offices.
Who can I complain to? The doctors and nurses are visibly frustrated with Windows every time I see them use it. If they can’t change it, how could I?
That ship has sailed anyway. I’ve had no less than 5 breach notifications show up in the mail from things related to my health care in the last 2 years, and it’s not like I’m constantly at the doctor. The whole system is a disaster.
I work for a healthcare company and when we launched we made a huge deal about only using Linux on our backend and only giving Macs to employees. It’s been almost 10 years and we’ve hired a small army of morons since then and they fired our CTO. These idiots have demanded windows so they can “do analytics” despite all our analytics being in looker and dbt and a bunch of fucking business bros in the csuite and vp level who demanded windows laptops because they just like it. They eventually canned our head of IT ans well and replaced him with a dumbass and that guy is currently trying to take MacBooks away from engineering. Then the head of “cloud engineering” just started outsourcing half our shit to consultants who keep building one off snowflake windows machines because nobody gives a shit anymore. So what used to be a clean ecosystem is now a giant botched pile of lowest effort garbage.
Stay away from this entire industry. There’s some brain rot where they only hire people with healthcare backgrounds even if the role has nothing to do with healthcare. What that turns into is people from ancient out of date orgs who have no idea what they are doing being hired over people from legitimate tech roles or any other background that is more advanced in other fields and the company will always slowly roll backwards into stupidity.
They might not know there are alternatives. So they likely do not ccomplain to their IT person.
Dont be a “jUsT uSe LiNuX” guy, but when you see them frustrated maybe say “hey I see you are frustrated as well and I as a patient are concerned about my medical data privacy. You know there are better and safer alternatives, maybe you could ask your IT if it would be possible to switch to Linux?”
Realistically, they can’t switch because the software to use some $€1m medical device only runs on windows.
I’ve had the se thought as expressed in the last paragraph the other day and isn’t the anwser in compatibility layer? Like can’t they install and run windows medical software using WINE?
Having worked in healthcare IT. Adding more complexity will only make things harder for them. A lot of healthcare staff can barely operate the Windows PCs and applications they’re used to. Change anything and they act like the sky is falling.
That opens up a legal liability for the people creating the compatibility layer. You’ve gone from two points of failure (the doctor and the machine) to three.
For sure it can be done but most people / companies won’t want to take on that liability.
I work in IT for healthcare, and our CTO, CIO, and head of Cybersecurity are all ex-Microsoft. We’re a “Windows Shop” adopting anything Microsoft has ever made, from Windows to Azure DevOps to Access
I sell encryption. Send me the lead dog ;p
Demand it from who? With what power or leverage?
Not to be defeatist, but I’m just a guy. Nobody’s gonna listen to my demands. I’m surprised privacy notifications say anything other than “You don’t have any” with two buttons that both say “OK”. All I can do is selfhost as much as possible and decline to use tons of applications or services that underpin modern societal functions or social activities. So I do. But it sucks ass and I don’t have any power to change any of it.
Where I am, unlike climate change, the privacy issue is not discussed properly so just explaining it to people that trust you can boost any future systemic action.
No, but the point they’re trying to make is, I think, that the more you complain, the more other people complain and the more other people start complaining and unless we have enough complainers and people switching, nothing is gonna change.
Our power is imperceptible but not non-existent
Wow that last line is exactly what I needed to hear, thank you
Valid. I also don’t have the “I don’t care” stance but rather that medical providers etc should go to jail for storing data on unsecure infrastructure
