Neuro rehab has gone in for pacing advice before other help. I’ve been chronically ill since early childhood and understand pacing. The OT heard the variety of things I do to get through the exhausting quantity of hours in a day and went straight to Look at how MUCH you’re doing without understanding that 1) the variety is trying to use different parts of my thinking (roughly words v not words) and 2) even if I do less, there are still 16 hours to get through every single bloody day.
Trying to use this as a time to re-evaluate what I am doing to fill the hours but there’s only so much lay in bed quietly with my eyes closed I can do without further damaging my mental health.
I don’t know if there is an answer to this. I used to be really good at reframing and thinking outside the box and I’ve been doing this for decades, but may as well throw this out here to see if anyone’s come up with any other ways to get through the days.
My spoons are crap because of the effort of going to the neuro rehab appt so will read replies but responding to them might not work so well. You know how that goes…
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