• FundMECFS
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    3 days ago

    Couldn’t we also use some of it to fund badly neglected care and research for the > 1 million europeans disabled by long COVID!

    • daniskarma@lemmy.dbzer0.com
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      2 days ago

      Do you have a source for that number?

      It seems a little to high, 1 million people facing disability for long covid within Europe.

      • FundMECFS
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        2 days ago

        1 million is probably an understatement. But I think one million is about right for people who experience significant disability from long COVID.

        Older data but europe based: https://www.who.int/europe/news-room/13-09-2022-at-least-17-million-people-in-the-who-european-region-experienced-long-covid-in-the-first-two-years-of-the-pandemic--millions-may-have-to-live-with-it-for-years-to-come

        Newer data but worldwide: https://pubmed.ncbi.nlm.nih.gov/39830235/

        • daniskarma@lemmy.dbzer0.com
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          2 days ago

          Yeah, I know about prevalence of long covid. I suffered it myself. But most common symptom is reduced ability to smell. And, while annoying, it’s not a disability. At least I don’t think you can file for disabilities on any european country due to that symptom.

          Many people had had and may still have symptoms from long covid. But one thing is having the illness and other, very different, is that the illness is so serious that it causes a disability on the person.

          • FundMECFS
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            2 days ago

            That’s actually not the case. For example this recent study actually found loss of taste and smell to be the least common long covid symptom they asked about. (no doubt to the fact that usually gets better within a couple months, while the other types of long COVID are often chronic).

            Source: https://www.medrxiv.org/content/10.1101/2024.11.27.24317656v1.supplementary-material

            Loss of taste and smell is a common short term symptom lingering a couple months after the infections. But long COVID commonly causes chronic lifelong illnesses like ME/CFS and POTS that don’t resolve with time, so their symptoms end up being more common.

            • daniskarma@lemmy.dbzer0.com
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              2 days ago

              Paper you linked does not support your statement. As it’s a paper on people on treatment for long covid.

              People whose long covid symptom is just reduced sense of smell would not seek treatment.

              I’m still highly skeptical of the “1 million disabled people by long covid in Europe” statement. There should be a clear statistic. As people who have been declared disabled are well counted here.

              It may be true. It just seems really high numbers to me.