Ideally you want to go to a shelter first, because if a shelter is dangerous or unclean you can just leave (unlike jail). If you can’t find a shelter that has space for you, the next best thing is to sleep somewhere visible but somewhat sheltered and out of the way. Church doorways are ideal since if they find you they will usually offer you help rather than call the cops on you.
If none of those avenues are available to you, hit up your local library. If they don’t outright have a social worker on staff they’ll know how to put you in contact with one and help you with applying for benefits that can at least keep you fed, and will hopefully know how to most effectively get you in line for housing.
I’m too physically limited for range of mobility like this. I can’t seem to find anyone that can diagnose what is actually wrong with my spine. It is in a rare region and complex. Nothing major comes up in a radiologist’s MRI report, and neurosurgeons all come with a severe legislatively induced allergy to anything complicated to diagnose or work on. Of 13, only one spent the time to get into the weeds and it was only to make up a legally plausible narrative reason to claim I needed several fusions. They only took the time because they were about to lose their license for malpractice (something I had no clue about at the time). There is no such thing as a House like spinal doctor that will observationally diagnose a person regardless of their ability to treat or the risk involved. If they diagnose the issue they will face subpoenas and lots of time wasted to bureaucratic nonsense. The only options appear to be paying several thousand dollars for a shady lawyer that can bribe their way through the hoops of capitalist privateers or homelessness/suicide. This is Los Angeles where there are 100k homeless within 100 miles of where I lay. There are no available social workers, and every shelter is beyond full. Even the homeless that try to group to help each other are attacked like rabid feral animals by orders of the criminal Newsom. I need a more effective plan.
I’m sorry you’re going through all that, I’m living in LA and also disabled from spinal issues so I’ve experienced a lot of what you’re talking about as well. I’ve basically resigned myself to ‘smoke weed all the time’ being the extent of medical management of my pain, because doctors can’t/won’t do anything else for me without potentially making other problems worse. Back problems are awful and not having any concrete answers is just about as bad.
What part of LA are you in, roughly, if you’re OK sharing? If you’re able to ride public transit I’d be happy to search around to try to find more resources near you.
In addition to getting arrested being dangerous, sleeping on a jail cot is probably going to be absolutely godawful for your back, at least as bad as sleeping in a doorway. If you’re sleeping on the ground outside you at least have some control over your environment, compared to jail.
Thanks. I’m in south OC and not in any present danger or state of mind. I was just denied disability for the second time in 4 years and trying to talk myself into mental options available beyond lead or fentanyl as my ultimate outcome.
Holding posture for longer than an hour has cascading repercussions that last days to weeks. If I am upright, ie. sitting or standing, I am hurting. After around an hour of endurance, I will be unable to sleep well enough to recover. I barely ever sleep six hours a day at most and even that is rather low quality. I turn into a zombie if this lasts for more than a week or so. At that point I start showing signs of severe sleep deprivation and mental instability typical of any human in such a state. My entire life revolves around avoiding this state. I have plenty of money and security for now, but no way to effectively support myself long term. I’m well above average and mentally capable, but I go through periodic ups and downs that are unpredictable. Stupid minor things can injure me. The lows disconnect me from a professionally competent state of mind, and I’m generally irritable enough to not be very pleasant to be around in person. I want to be, and be myself, but the best way to put it is that my pain is constant and like living with a neighbour that always plays annoyingly loud music; EVERYTHING I do is forced to shout over that noise. It is like my internal voice is shouting over that noise and I must listen carefully to hear it. Sometimes it is just too noisy and hard to focus past it. When I am upright holding posture in any way, the noise is slowly getting louder. In physical terms, it feels like I give you a 1lb dumbbell and tell you to hold it at shoulder height with your arm fully extended–easy… at first…but try doing it for an hour. I’ve stubbornly pushed WAY past it to prove to myself it is not a mental thing. I was on the floor of a restaurant writhing in sharp shooting pain when a long time friend came to visit. I didn’t sleep for days and took almost 2 months to recover to the point of sleeping 6 hours for the first time.
I’m sorry dude, I’ve had a lot of family members go through the wringer trying to get disability as well. The one and only person I’ve ever known to get it first try was dying of cancer. The system is made to make people give up when they’re least able to fight it, it’s sickening.
I’m not familiar with any of OC so I’m not going to be any more helpful than a Google search on that front. But oh man, do I hear you on what the lack of sleep from pain does to you. I feel lucky I’m able to get 6-7 hours most nights, minus time spent waking up and trying to get comfortable. Thank fuck Ikea makes comparatively inexpensive foam mattresses. If you aren’t on gabapentin already, it helps with nerve pain and makes a decent sleep aid.
Are you familiar with the idea of pacing? It’s a strategy recommended for patients with ME/CFS to prevent triggering relapses, and I’ve found those ideas to be a useful way to manage chronic pain as well, on the preventative end.
Good luck man, I’ve been dealing with this shit for over half my life at this point. It sucks and it’s hard and it’s not fair and we might actually be living in one of the worst countries to be dealing with chronic medical issues. If you feel like wanting to scream and beat someone bloody over it, well, to me that’s pretty understandable.
I have nerve issues. My nerves just move around, usually due to an injury, but not always. Never had a doctor diagnose me properly. They wanted to fix my knee cap surgically or tell me that my pelvis moves. If I bend, or sleep, or lift the wrong way something moves. I can’t keep a bent position very long, and sometimes my knee just randomly hurts after walking. Sometimes I get shooting pains in my elbows.
I know this sounds ridiculous, but, finally I got word of a guy from mexico, he was really old and most likely dead by now, but he was known as a massage healer. He would zero in on the spot and just work his magic. After going back a few times, it would stay mostly stay in place. I did have to exercise a bit (walking was enough) so the muscles would keep the nerve in place, but I could do so pain free.
Either way, I got too lazy and of course the pain came back. I’ve been to a couple other people who claim to do what he did, but its never worked the same. Closest anyone ever got to keeping me pain free for any amount of time, was a sports masseuse.
I don’t know if you’ve ever heard of someone in your area like that, but it might be worth a shot. He would tell stories of how he helped all sorts of people with all sorts of aliments. This guy was well known in the Hispanic community, and people would come from other states just to see him, for all sorts of issues. If someone like this exists around you, they should be too hard to find if you ask the right people. Worst that can happen is you get a massage.
A shelter is normally dorm style sleeping arrangements with lunatics and meth heads sans food or anywhere to be during the day. Not all places will even offer food or medical even
Sounds like all jails barring a shitty yard to walk in for a bit each day. The food is also often spoiled or otherwise fucked up somehow. OP mentioned having a highly specific and hard to pin down spinal disability. Jails and prisons are much more likely to make that far worse.
Basically every problem people can think of will often apply to jail or prison and OP wont be able to leave when they want. Plus, when they get out, they’ll have new debts to pay, and a shiny new record to carry around for the rest of their lives.
Not baiting. Just trying to convince myself that lead or fentanyl is not my only option within the decade and after my folks die. If those are my only options, it is hard to justify remaining a burden to them in the interm, and holding off the inevitable. This is the depressing reality. All those homeless people out there; the majority are in my shoes but just further down the timeline. This country has a policy of coerced suicide as a social safety net.
I was disabled by a terrible driver while riding a bicycle to work 2/26/14. I was the Buyer for a chain of bike shops, riding on a designated bike route, an amateur racer, on a $4500 demo bike, in a nice area, close to the beach. I’m you, on a bad day with some shit luck. This is your reality too. You are one bad day away from where I lay right now. You’re not smarter or better. You can not account for a driver that pulls directly into another SUV suddenly and sends the second car into you. No skill or intuition or caution can save you from such a circumstance. It doesn’t matter if you’re on a bicycle, in a car, walking, or even laying on a couch in your living room. This kind of event can still find you. When it does, in the USA, you will be pushed into homelessness, destitution, and an anonymous death on a cold rainy night in a gutter. This is the American standard of ethics and morality; yours and mine; our standard of ethics and morality.
“Bad things happen when good people do nothing.” -MLK
I did nothing in practice. So I am part of the problem. All I can do is tell you of the reality. I am you, after a single bad day at the hands of someone else. I don’t even remember the crash or anything due to my head injury. I woke up from a blank darkness suddenly with the last thing I remembered was riding and being in motion on a beautiful February morning.
The real answer that anyone can realistically give you is to fight for your life and dont give in to despair. You can have your time to despair of course, but dont let it swallow you. Thats pretty general and beyond that, it’ll be advice to seek out programs that help which is also general and not always helpful.
Your life is your own and flavored with so many variables that internet people can only help so much. I won’t give you advice, but I will tell you who I am and maybe that will help in some small way.
I am a double leg amputee. A hip disarticulation on the left (no leg at all) and an above knee amputation on the right. I was a 35 year old professional driver with a six month old daughter when the accident that took my legs happened to me. I had no fault in it and had no way of seeing it coming. It was something I was forced to deal with. I was in a coma for a month.
I woke up to endless pain, an ended relationship that was rocky anyway and a body so weak I had to start from scratch on even basic things like opening a can of soda. I was told I would have to use a power chair because of how damaged I was. I worked to be stronger than that and I succeeded, despite my endless phantom limb pain sometimes driving me insane. I use a manual chair by choice and I can do many other things I was told I wouldn’t be able to do again. Being legless and poor didn’t even stop me from meeting my wife, who is doing crafts with my daughter next to me.
It’s been a decade since the accident and my life is more solidly grounded now then it ever was when I was able bodied. I faced enormous pain and physical challenges and still do, but I’m glad of it. It was the forging fire that revealed who I am now.
There is a you that is looking back from a decade in the future. Who do they see in you now? The beginning of some maudlin end without even a fight, or the spark that eventually became your fire? If I can get through the shit, so can you.
Thanks. I appreciate the story and support. I certainly have no idea what it would be like in your situation. I was an amateur bicycle racer. I was folded backwards and had most of my features in my neck, but all of my pain has always been thoracic (between the shoulder blades). My limitations are not just pain but more like a muscular failure that posture causes. I wish I could sit in a chair. I mean no disrespect when I say this, but I would trade my legs for the ability to hold my head up and hold posture.
In cycling and racing, it is more of a mental sport than a physical. A crit is a formal type of bicycle race set up around an industrial park loop or a city block type of environment. It involves around 50-100 people and lasts anywhere form 20 minutes to 1 hour for each class of racers. By the last few laps, you’re blood oxygen is super low and all of your blood flow is going to your legs. The pain is extreme and everything in your body is saying hell no. The last lap is all about strategy, being sharp, and self aware. At the same time, it feels like I have the mental capacity of a toddler. The game of it becomes this internal battle between instinct, intellect, and how that aligns with chance and the way 10-15 other people on the front are coping with similar constraints. The physicality differences are negligible under most circumstances at this stage. It largely comes down to who has the highest pain threshold in the moment.
For me cycling has always been this fascinating struggle of overcoming pain perception. This is my background relative to what I call pain. I hurt a tremendous amount all of the time. If that is all I had to deal with, I would be fully functional. My old physical therapist for 2 years started trying to invent tools to help him with deep tissue massage because I wore him out unlike anyone he had ever worked on. I told him, “blood sweat or tears, otherwise you’re not pushing me hard enough.” I stopped pushing like that after I broke my scapula from pushing too hard. That is when I started developing a better routine empirically that got me off the rollercoaster of major ups and downs and allowed me to get more consistent sleep. Still I’m slowly degrading. I fight, but I fight with routine structure.
No pain meds change what hurts in my back or the length of time I can endure, they only impact my cognitive function and how much I care. I guarantee that something muscular inside of me is broken or loose or damaged in some way. A more advanced future state of medicine would likely fix me without issues.
I’ve also gone down twice on the bike since the broken neck and back. Both times I had broken ribs. Both times I just rode back home, because that kind of pain is a joke to me. When my ribs swell like that, I actually feel better. Both times, for two weeks I felt the best I have felt in 10 years. An epidural injection on both sides of my Spesious me felt great as well, but only lasted 3 days. So all I need to do is break some ribs and I am functional again. You’d think that would mean something to someone in medicine, but no dice.
It probably sounds crazy, but having something that is clearly able to put me in the disabled category would in many ways make my life easier, but that part is just a minor issue. The really hard part for me is that I can’t really be around other people. I often regret my words in person. I can’t suppress the pain to the point of fully masking it. I can’t do anything in the outside world with dignity or be myself. The act of getting dressed and transportation is already placing me under extreme stress. Laying in bed, I toss and turn. I’m always uncomfortable and deeply sleep deprived. I dread any upright activity, but wake up in a cold sweat every day from being in the same positions for too long. Anything that helps with this level of pain causes me to stay in the same positions longer and that leads to pulls, strains, and a much larger cycle of minor ups but much lower downs. I can’t get assistance like I need. I’ve tried to date and meet people, but I am not myself, and the physical cost to try is enormous. I have nothing to offer anyone. The thought of burdening someone else, on top of the physical and mental cost were simply untenable for me. I have to manage me mental state and sleep first above all else.
That is why I love a place like Lemmy. I can write, reread, and think out my words in a way that feels like who I want to be, like I am myself in a way.
For you it seems to have been the fire. For me, I was already a freaking torch. The hard thing for me was acknowledging and coming to terms with my limitations and making the best of what I can do and what I have. I’m already in a prison of sorts. It can always be worse, until you’re not around to talk about it. I’m glad you found yourself. Indeed, I was a car nut that built engines, owned a body shop, painted, and did airbrush graphics. I was 340 lbs in '09 and under 190 lbs in 2013, because what good is my B&M mini blower in my camaro when I can’t overhaul and supercharge my own meatsack engine. I had the heads off of that camaro at the time, and had to sell it all when I couldn’t recover to the point of finishing the port and build. I’ve reinvented my Maker spirit elsewhere, but I died 2/26/14 and had to come to terms with a newly invented me. I understand that part. It is hard to relate just how odd it is to be so capable, but yet so very limited at the same time. I can’t effectively network socially, and I am very aware of the outcome that this means. This is not a plea for help. I don’t really need or want any. It is a statement of the indignity really. I shouldn’t be put into this situation and help so impossibly out of reach in terms of state support. I don’t have the margins to invest myself in the malignancy of the system and manage my needs and routine. It seems the concept of disability always accompanies the idea that one can sit upright, albeit in a manual or power chair. Thoracic damage is very rare. It only represents around 5% of cases for most neurosurgeons. It doesn’t follow any of the regular assumptions about back problems in how it manifests.
I’m well aware, the person looking back at me, if they are still alive, will roll their eyes at how dumb I am now, how much better I had it, and how I had nothing to complain about. Thanks for your thoughts and story. I’m glad you found your fire. I may not be a torch, but hey, at least I am still a lighter and can hold a flame.
Ideally you want to go to a shelter first, because if a shelter is dangerous or unclean you can just leave (unlike jail). If you can’t find a shelter that has space for you, the next best thing is to sleep somewhere visible but somewhat sheltered and out of the way. Church doorways are ideal since if they find you they will usually offer you help rather than call the cops on you.
If none of those avenues are available to you, hit up your local library. If they don’t outright have a social worker on staff they’ll know how to put you in contact with one and help you with applying for benefits that can at least keep you fed, and will hopefully know how to most effectively get you in line for housing.
I’m too physically limited for range of mobility like this. I can’t seem to find anyone that can diagnose what is actually wrong with my spine. It is in a rare region and complex. Nothing major comes up in a radiologist’s MRI report, and neurosurgeons all come with a severe legislatively induced allergy to anything complicated to diagnose or work on. Of 13, only one spent the time to get into the weeds and it was only to make up a legally plausible narrative reason to claim I needed several fusions. They only took the time because they were about to lose their license for malpractice (something I had no clue about at the time). There is no such thing as a House like spinal doctor that will observationally diagnose a person regardless of their ability to treat or the risk involved. If they diagnose the issue they will face subpoenas and lots of time wasted to bureaucratic nonsense. The only options appear to be paying several thousand dollars for a shady lawyer that can bribe their way through the hoops of capitalist privateers or homelessness/suicide. This is Los Angeles where there are 100k homeless within 100 miles of where I lay. There are no available social workers, and every shelter is beyond full. Even the homeless that try to group to help each other are attacked like rabid feral animals by orders of the criminal Newsom. I need a more effective plan.
I’m sorry you’re going through all that, I’m living in LA and also disabled from spinal issues so I’ve experienced a lot of what you’re talking about as well. I’ve basically resigned myself to ‘smoke weed all the time’ being the extent of medical management of my pain, because doctors can’t/won’t do anything else for me without potentially making other problems worse. Back problems are awful and not having any concrete answers is just about as bad.
What part of LA are you in, roughly, if you’re OK sharing? If you’re able to ride public transit I’d be happy to search around to try to find more resources near you.
In addition to getting arrested being dangerous, sleeping on a jail cot is probably going to be absolutely godawful for your back, at least as bad as sleeping in a doorway. If you’re sleeping on the ground outside you at least have some control over your environment, compared to jail.
Thanks. I’m in south OC and not in any present danger or state of mind. I was just denied disability for the second time in 4 years and trying to talk myself into mental options available beyond lead or fentanyl as my ultimate outcome.
Holding posture for longer than an hour has cascading repercussions that last days to weeks. If I am upright, ie. sitting or standing, I am hurting. After around an hour of endurance, I will be unable to sleep well enough to recover. I barely ever sleep six hours a day at most and even that is rather low quality. I turn into a zombie if this lasts for more than a week or so. At that point I start showing signs of severe sleep deprivation and mental instability typical of any human in such a state. My entire life revolves around avoiding this state. I have plenty of money and security for now, but no way to effectively support myself long term. I’m well above average and mentally capable, but I go through periodic ups and downs that are unpredictable. Stupid minor things can injure me. The lows disconnect me from a professionally competent state of mind, and I’m generally irritable enough to not be very pleasant to be around in person. I want to be, and be myself, but the best way to put it is that my pain is constant and like living with a neighbour that always plays annoyingly loud music; EVERYTHING I do is forced to shout over that noise. It is like my internal voice is shouting over that noise and I must listen carefully to hear it. Sometimes it is just too noisy and hard to focus past it. When I am upright holding posture in any way, the noise is slowly getting louder. In physical terms, it feels like I give you a 1lb dumbbell and tell you to hold it at shoulder height with your arm fully extended–easy… at first…but try doing it for an hour. I’ve stubbornly pushed WAY past it to prove to myself it is not a mental thing. I was on the floor of a restaurant writhing in sharp shooting pain when a long time friend came to visit. I didn’t sleep for days and took almost 2 months to recover to the point of sleeping 6 hours for the first time.
I’m sorry dude, I’ve had a lot of family members go through the wringer trying to get disability as well. The one and only person I’ve ever known to get it first try was dying of cancer. The system is made to make people give up when they’re least able to fight it, it’s sickening.
I’m not familiar with any of OC so I’m not going to be any more helpful than a Google search on that front. But oh man, do I hear you on what the lack of sleep from pain does to you. I feel lucky I’m able to get 6-7 hours most nights, minus time spent waking up and trying to get comfortable. Thank fuck Ikea makes comparatively inexpensive foam mattresses. If you aren’t on gabapentin already, it helps with nerve pain and makes a decent sleep aid.
Are you familiar with the idea of pacing? It’s a strategy recommended for patients with ME/CFS to prevent triggering relapses, and I’ve found those ideas to be a useful way to manage chronic pain as well, on the preventative end.
Good luck man, I’ve been dealing with this shit for over half my life at this point. It sucks and it’s hard and it’s not fair and we might actually be living in one of the worst countries to be dealing with chronic medical issues. If you feel like wanting to scream and beat someone bloody over it, well, to me that’s pretty understandable.
I have nerve issues. My nerves just move around, usually due to an injury, but not always. Never had a doctor diagnose me properly. They wanted to fix my knee cap surgically or tell me that my pelvis moves. If I bend, or sleep, or lift the wrong way something moves. I can’t keep a bent position very long, and sometimes my knee just randomly hurts after walking. Sometimes I get shooting pains in my elbows.
I know this sounds ridiculous, but, finally I got word of a guy from mexico, he was really old and most likely dead by now, but he was known as a massage healer. He would zero in on the spot and just work his magic. After going back a few times, it would stay mostly stay in place. I did have to exercise a bit (walking was enough) so the muscles would keep the nerve in place, but I could do so pain free.
Either way, I got too lazy and of course the pain came back. I’ve been to a couple other people who claim to do what he did, but its never worked the same. Closest anyone ever got to keeping me pain free for any amount of time, was a sports masseuse.
I don’t know if you’ve ever heard of someone in your area like that, but it might be worth a shot. He would tell stories of how he helped all sorts of people with all sorts of aliments. This guy was well known in the Hispanic community, and people would come from other states just to see him, for all sorts of issues. If someone like this exists around you, they should be too hard to find if you ask the right people. Worst that can happen is you get a massage.
totally doesnt answer the original question
That’s a question without an answer, because there is no safe way to get the LAPD to arrest you.
deleted by creator
I don’t think this came out the way you envisioned it
Kk
A shelter is normally dorm style sleeping arrangements with lunatics and meth heads sans food or anywhere to be during the day. Not all places will even offer food or medical even
Sounds like all jails barring a shitty yard to walk in for a bit each day. The food is also often spoiled or otherwise fucked up somehow. OP mentioned having a highly specific and hard to pin down spinal disability. Jails and prisons are much more likely to make that far worse.
Basically every problem people can think of will often apply to jail or prison and OP wont be able to leave when they want. Plus, when they get out, they’ll have new debts to pay, and a shiny new record to carry around for the rest of their lives.
Honestly though, I think OP is just baiting.
Not baiting. Just trying to convince myself that lead or fentanyl is not my only option within the decade and after my folks die. If those are my only options, it is hard to justify remaining a burden to them in the interm, and holding off the inevitable. This is the depressing reality. All those homeless people out there; the majority are in my shoes but just further down the timeline. This country has a policy of coerced suicide as a social safety net.
I was disabled by a terrible driver while riding a bicycle to work 2/26/14. I was the Buyer for a chain of bike shops, riding on a designated bike route, an amateur racer, on a $4500 demo bike, in a nice area, close to the beach. I’m you, on a bad day with some shit luck. This is your reality too. You are one bad day away from where I lay right now. You’re not smarter or better. You can not account for a driver that pulls directly into another SUV suddenly and sends the second car into you. No skill or intuition or caution can save you from such a circumstance. It doesn’t matter if you’re on a bicycle, in a car, walking, or even laying on a couch in your living room. This kind of event can still find you. When it does, in the USA, you will be pushed into homelessness, destitution, and an anonymous death on a cold rainy night in a gutter. This is the American standard of ethics and morality; yours and mine; our standard of ethics and morality.
“Bad things happen when good people do nothing.” -MLK
I did nothing in practice. So I am part of the problem. All I can do is tell you of the reality. I am you, after a single bad day at the hands of someone else. I don’t even remember the crash or anything due to my head injury. I woke up from a blank darkness suddenly with the last thing I remembered was riding and being in motion on a beautiful February morning.
The real answer that anyone can realistically give you is to fight for your life and dont give in to despair. You can have your time to despair of course, but dont let it swallow you. Thats pretty general and beyond that, it’ll be advice to seek out programs that help which is also general and not always helpful.
Your life is your own and flavored with so many variables that internet people can only help so much. I won’t give you advice, but I will tell you who I am and maybe that will help in some small way.
I am a double leg amputee. A hip disarticulation on the left (no leg at all) and an above knee amputation on the right. I was a 35 year old professional driver with a six month old daughter when the accident that took my legs happened to me. I had no fault in it and had no way of seeing it coming. It was something I was forced to deal with. I was in a coma for a month.
I woke up to endless pain, an ended relationship that was rocky anyway and a body so weak I had to start from scratch on even basic things like opening a can of soda. I was told I would have to use a power chair because of how damaged I was. I worked to be stronger than that and I succeeded, despite my endless phantom limb pain sometimes driving me insane. I use a manual chair by choice and I can do many other things I was told I wouldn’t be able to do again. Being legless and poor didn’t even stop me from meeting my wife, who is doing crafts with my daughter next to me.
It’s been a decade since the accident and my life is more solidly grounded now then it ever was when I was able bodied. I faced enormous pain and physical challenges and still do, but I’m glad of it. It was the forging fire that revealed who I am now.
There is a you that is looking back from a decade in the future. Who do they see in you now? The beginning of some maudlin end without even a fight, or the spark that eventually became your fire? If I can get through the shit, so can you.
Thanks. I appreciate the story and support. I certainly have no idea what it would be like in your situation. I was an amateur bicycle racer. I was folded backwards and had most of my features in my neck, but all of my pain has always been thoracic (between the shoulder blades). My limitations are not just pain but more like a muscular failure that posture causes. I wish I could sit in a chair. I mean no disrespect when I say this, but I would trade my legs for the ability to hold my head up and hold posture.
In cycling and racing, it is more of a mental sport than a physical. A crit is a formal type of bicycle race set up around an industrial park loop or a city block type of environment. It involves around 50-100 people and lasts anywhere form 20 minutes to 1 hour for each class of racers. By the last few laps, you’re blood oxygen is super low and all of your blood flow is going to your legs. The pain is extreme and everything in your body is saying hell no. The last lap is all about strategy, being sharp, and self aware. At the same time, it feels like I have the mental capacity of a toddler. The game of it becomes this internal battle between instinct, intellect, and how that aligns with chance and the way 10-15 other people on the front are coping with similar constraints. The physicality differences are negligible under most circumstances at this stage. It largely comes down to who has the highest pain threshold in the moment.
For me cycling has always been this fascinating struggle of overcoming pain perception. This is my background relative to what I call pain. I hurt a tremendous amount all of the time. If that is all I had to deal with, I would be fully functional. My old physical therapist for 2 years started trying to invent tools to help him with deep tissue massage because I wore him out unlike anyone he had ever worked on. I told him, “blood sweat or tears, otherwise you’re not pushing me hard enough.” I stopped pushing like that after I broke my scapula from pushing too hard. That is when I started developing a better routine empirically that got me off the rollercoaster of major ups and downs and allowed me to get more consistent sleep. Still I’m slowly degrading. I fight, but I fight with routine structure.
No pain meds change what hurts in my back or the length of time I can endure, they only impact my cognitive function and how much I care. I guarantee that something muscular inside of me is broken or loose or damaged in some way. A more advanced future state of medicine would likely fix me without issues.
I’ve also gone down twice on the bike since the broken neck and back. Both times I had broken ribs. Both times I just rode back home, because that kind of pain is a joke to me. When my ribs swell like that, I actually feel better. Both times, for two weeks I felt the best I have felt in 10 years. An epidural injection on both sides of my Spesious me felt great as well, but only lasted 3 days. So all I need to do is break some ribs and I am functional again. You’d think that would mean something to someone in medicine, but no dice.
It probably sounds crazy, but having something that is clearly able to put me in the disabled category would in many ways make my life easier, but that part is just a minor issue. The really hard part for me is that I can’t really be around other people. I often regret my words in person. I can’t suppress the pain to the point of fully masking it. I can’t do anything in the outside world with dignity or be myself. The act of getting dressed and transportation is already placing me under extreme stress. Laying in bed, I toss and turn. I’m always uncomfortable and deeply sleep deprived. I dread any upright activity, but wake up in a cold sweat every day from being in the same positions for too long. Anything that helps with this level of pain causes me to stay in the same positions longer and that leads to pulls, strains, and a much larger cycle of minor ups but much lower downs. I can’t get assistance like I need. I’ve tried to date and meet people, but I am not myself, and the physical cost to try is enormous. I have nothing to offer anyone. The thought of burdening someone else, on top of the physical and mental cost were simply untenable for me. I have to manage me mental state and sleep first above all else.
That is why I love a place like Lemmy. I can write, reread, and think out my words in a way that feels like who I want to be, like I am myself in a way.
For you it seems to have been the fire. For me, I was already a freaking torch. The hard thing for me was acknowledging and coming to terms with my limitations and making the best of what I can do and what I have. I’m already in a prison of sorts. It can always be worse, until you’re not around to talk about it. I’m glad you found yourself. Indeed, I was a car nut that built engines, owned a body shop, painted, and did airbrush graphics. I was 340 lbs in '09 and under 190 lbs in 2013, because what good is my B&M mini blower in my camaro when I can’t overhaul and supercharge my own meatsack engine. I had the heads off of that camaro at the time, and had to sell it all when I couldn’t recover to the point of finishing the port and build. I’ve reinvented my Maker spirit elsewhere, but I died 2/26/14 and had to come to terms with a newly invented me. I understand that part. It is hard to relate just how odd it is to be so capable, but yet so very limited at the same time. I can’t effectively network socially, and I am very aware of the outcome that this means. This is not a plea for help. I don’t really need or want any. It is a statement of the indignity really. I shouldn’t be put into this situation and help so impossibly out of reach in terms of state support. I don’t have the margins to invest myself in the malignancy of the system and manage my needs and routine. It seems the concept of disability always accompanies the idea that one can sit upright, albeit in a manual or power chair. Thoracic damage is very rare. It only represents around 5% of cases for most neurosurgeons. It doesn’t follow any of the regular assumptions about back problems in how it manifests.
I’m well aware, the person looking back at me, if they are still alive, will roll their eyes at how dumb I am now, how much better I had it, and how I had nothing to complain about. Thanks for your thoughts and story. I’m glad you found your fire. I may not be a torch, but hey, at least I am still a lighter and can hold a flame.