Tara Rule says her doctor in upstate New York was “determined to protect a hypothetical fetus" instead of helping her treat debilitating pain.

  • lolcatnip@reddthat.com
    link
    fedilink
    English
    arrow-up
    91
    ·
    1 year ago

    Based on what I’ve read in r/childfree, it’s far more common than not for doctors to prioritize the needs of a hypothetical husband or fetus over those of a real live woman. I’ve also known someone in real life who couldn’t get a painful medical condition fixed until her mid 30s because the treatment caused sterility. The problem goes way beyond religion; it’s more a matter of institutional sexism and the hubris of doctors thinking they know better than any woman who says she doesn’t want kids.

    • BeaPep@sh.itjust.works
      link
      fedilink
      arrow-up
      44
      ·
      1 year ago

      I’ve been to several different OBs trying to solve my almost-two-year-long-period and every single one of them refuses to do anything for me. I’m just “too young” for them to stop me from having kids one day. And giving me a hysterectomy is “too dangerous” and “risky” when my life isn’t in danger. It doesn’t matter that I’ve tried everything they suggest. Try it again!! It’s so fucking tiring.

      I’ve just given up paying the constant doctor fees to see asshole doctors anymore and just figure I’ll either stop having the problem eventually or I’ll be “old enough” (40 maybe?) to finally get surgery… It’s all a nightmare, especially in the religious south…

      • ikidd@lemmy.world
        link
        fedilink
        English
        arrow-up
        19
        ·
        edit-2
        1 year ago

        I’d check with a women’s group or Planned Parenthood for a doctor recommendation. They might know some sane ones.

        Having been married to a sane one, I do know they’re spectacularly gunshy of affecting a woman’s fertility because it can get them sued into the ground if they do something like that to someone that someday wants kids. And patients lie, so when you tell a doctor that you don’t want kids, they assume you’re going to change your mind. And I’m not sure if there’s a disclosure you can sign that would hold up in court if you changed your mind one day. So there’s that.

        • BeaPep@sh.itjust.works
          link
          fedilink
          arrow-up
          1
          ·
          1 year ago

          I might try this! I haven’t tried Planned Parenthood yet.

          Honestly I feel like I’ve tried everything to make them listen!! I’ve brought my wife with me to the appointments!! I’ve mentioned that I first brought up hysterectomies at 17 when I suffered from multi-week periods! I’ve mentioned I’m asexual and that I’m married and never even had sex so I don’t see kids in the future!

          But I do get that doctors have to worry about the liars. I can get why it’s important to have the option to sue a doctor who wronged you but I wish there really was an intensive disclosure you could just do rather than run around until you find a doctor who’s willing to trust you not to regret it. It sucks all around.

      • switches@kbin.social
        link
        fedilink
        arrow-up
        17
        ·
        1 year ago

        my friend was having enormous clots come out during her horrifically long periods, losing the amount of blood that was actually making her anemic and causing her problems, and they still didn’t want to do anything because she was only in her 30s. thankfully she finally found a doctor who was like ‘wow yeah you need that thing taken out of there its killing you’ and she got it removed, but the fact she had to go through all that stress and pain to find anyone who would help her is absurd.

      • PrincessLeiasCat@sh.itjust.works
        link
        fedilink
        arrow-up
        14
        ·
        1 year ago

        Can you find a doctor near you in the list in the r/childfree sidebar? That’s how I found mine, and she’s great. Good luck to you, I hope things turn out better. I’m sorry this is a thing :(

      • medgremlin@lemmy.sdf.org
        link
        fedilink
        arrow-up
        11
        ·
        1 year ago

        r/childfree has a list of providers by state that regularly provide hysterectomies. I recommend checking it out, and when you call for an appointment, say that you want a consultation for a hysterectomy and don’t say anything else. I saw one of the providers from that list and she agreed that a hysterectomy was appropriate for me (31 years old, no kids) in part because of how horrible my periods are when I’m not on continuous hormonal birth control. The only reason we didn’t schedule the surgery right then and there is because the Depo shot is working for the moment and she was concerned about how the recovery from surgery would affect my ability to study for medical school and board exams.

        • BeaPep@sh.itjust.works
          link
          fedilink
          arrow-up
          3
          ·
          edit-2
          1 year ago

          I actually tried three different providers from the childfree subreddit. One ended up refusing me entirely due to no insurance (I’m in Georgia and Medicaid hasn’t been expanded yet. Though there was a mini-expansion this year.) and another actually worked with me over the phone for around 2 months without making me go to an appointment and pay just to see if I had enough… “evidence” or something that they could sign off on a hysterectomy. They ended up telling me I’d need to at least re-try several things first. I couldn’t afford the surgery plus 5+ visits several hours away. The third closest option from the childfree list was in another state and couldn’t see me unless I had their state insurance coverage.

          I’m trying the Depo shot now from the health department but it hasn’t helped at all. Thank you though! It’s a long road ahead.

          Edit: The provider who worked with me over the phone did offer me an ablation but they couldn’t guarantee that it would fix the issues and it would cost me my entire hysterectomy savings fund so I just couldn’t justify it. I may have the term “ablation” wrong because I remember I spoke in depth about it and one other very similar procedure… Either way they were very nice at least and I can see why they are on the list.

          • medgremlin@lemmy.sdf.org
            link
            fedilink
            arrow-up
            2
            ·
            1 year ago

            Yeah, healthcare in this country is a hot mess in a lot of ways. Something that could help push it in the direction of getting coverage is if you have any family history of things like uterine fibroids, or gynecological cancers. It’s a pretty straightforward thing on the paperwork end of things if cancer prophylaxis is on the list of reasons.

            Another thing you could consider in this capitalist hellscape is signing up for a plan off the ACA that has a deductible similar to or less than your savings. That way you would wipe out the deductible immediately, have access to more providers, and have some semblance of coverage for the rest of the year.

      • Tefinite Dev@lemmy.world
        link
        fedilink
        arrow-up
        6
        ·
        1 year ago

        Wow, all it took for me was a gay man clutching my testicles during a five minute conversation about how vasectomies aren’t really reversible for me to get clipped. I was only 30 years old

      • whatwhatwutyut@midwest.social
        link
        fedilink
        arrow-up
        3
        ·
        1 year ago

        “Too risky” is such bullshit anyway. My OBGYN said that at my age (22), the only risks (aside from potential complications that come with ANY surgery) were a slightly early menopause (couple years max) and higher chance of vaginal prolapse (but that they put supports in place and there are things that can be done to correct this if it occurs)

        • BeaPep@sh.itjust.works
          link
          fedilink
          arrow-up
          2
          ·
          1 year ago

          Right?? That’s pretty much what it seemed like to me too. No doctor really wanted to go into it except one mentioned that “any surgery with anesthesia can be dangerous!” and I remember I ditched that doctor on the first visit. I think a lot of it is rural areas have… less than great doctors.

          Most of my doctor hopping was at least 9 months ago now so it all kinda just blurs together now.