• FundMECFSResearchOP
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    4 days ago

    Ah sorry about that.

    If useful for you bluesky has become quite a nice congregation sort of place for people with long COVID. I can privately send you a starter pack if you’d like.

    Also, The Sick Times has been doing some excellent journalism and resource sharing vis à vis long COVID.

    I’m just sharing incase useful, I’ve felt so much safer now that I have a community of people with the same disability as me to discuss with :).

    r/covidlonghaulers on reddit is alright, but full of people claiming random unproven treatments cured them, sometimes it reads like an essential oils facebook page, (and that’s not even counting r/longcovid, which is owned by a company selling vitamins lol).