Disclaimer: I have no quarrel with the mods using the term in the creation of this community. I understand why they chose it, as even if they share my disagreement with the term when applied to ADHD, there’s not really a better inclusive term. “Mental illness” is really the only other option, and naming a community that would probably invite darker discussions that the mods might not be prepared to handle.

Another disclaimer: I think the term is perfectly valid when applied to autism, as autism is not, to the best of my knowledge, a mental illness so much as a difference in processing. Being autistic is only “bad” in the sense that our society discourages autistic traits. (Apologies if this is wrong; I’m neither autistic nor especially knowledgeable about autism.)

The term “neurodivergent” implies that there’s nothing wrong with you if you have ADHD–you’re just special and different. But my ADHD is an illness that requires treatment. A lot of people will tell you that the only reason ADHDers struggle is because society is set up wrong, but I don’t think that’s true, at least for me. Being unable to remember anything, unable to self-start, and hypersensitive to rejection would be massive problems in any world. Sure, the world today is particularly brutal for ADHDers in a way we could probably mitigate if we reorganized society to be kinder, but that doesn’t mean ADHD isn’t ultimately a disorder that some people need to treat with medication and therapy.

  • Kamirose
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    10 months ago

    I don’t think the term “neurodivergent” implies there’s nothing wrong with you and you don’t need treatment. Neurodivergent is also used to describe bipolar disorder, schizophrenia, and schizoaffective disorder. The term means that there is a structural difference in how the brain deveops in comparison to neurotypical people, as opposed to a “chemical imbalance” as is often used to describe mental illnesses such as depression and anxiety, which you can be born with but you can also develop due to trauma.

    • @balerion@beehaw.orgOP
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      410 months ago

      Fair enough. I suppose it just grates on me a little because a lot of the time I see the term paired with the “you’re just special and different, maybe even BETTER” rhetoric.

  • @Parsnip8904@beehaw.org
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    1410 months ago

    Neurodivergent is a technical term that denotes that your brain is wired outside the norm. It doesn’t actually say anything about if it has a medical diagnosis attached or not.

    I found the second part kind of funny because executive function deficit, issues with hypersensitivity, extreme empathy, struggle with impulse control and so on, are all things that people with ASD struggle with.

    • Kamirose
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      10 months ago

      Yup, people with ASD, OCD, and CPTSD also struggle with these issues. They tend to be mis-diagnosed with other conditions on the list fairly frequently.

      Side note: If you’re diagnosed with ADHD but stimulants make your symptoms worse, consider being evaluated for OCD instead. That was something a friend of mine experienced.

      • Pigeon
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        810 months ago

        The fact that cPTSD, and other mental illnesses, can cause many of the same problems as “from birth hardwired” neurodivergences, does make me tend to consider mentally ill folks as a type of neurodivergent too, personally. The difference is they might one day no longer have cPTSD, I guess, but one might as well say they’re neurodivergent now and might not be later.

        Neurodivergent is one of those terms I find both very useful and very misleading, in that I don’t think “neurotypicals” really exist in the way people talk about them.

        • Gaywallet (they/it)M
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          710 months ago

          I think it’s best to think of it as an umbrella term much like queer, where it’s just an acknowledgement of the diversity of human life and helping others to understand that you may think, behave, and act a bit differently than most people.

        • Kamirose
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          710 months ago

          Yeah, there’s definitely a conversation to be had about the terms and their usefulness. I do think it can be useful to differentiate “maybe possibly one day curable” conditions vs “you will always have this” conditions, and right now “neurodiverse” is used as that umbrella term. If something else suits it better later, I’m open to it.

          However, just because different conditions can cause the same symptoms doesn’t mean we should group them together IMO. Both a cold and lung cancer can cause coughing, but it’s important to know why you are coughing to receive effective treatment, if that quick and rough analogy makes sense.

          • @Parsnip8904@beehaw.org
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            310 months ago

            This is very true. A simple example I can think of is how repetitive behaviour can manifest anxiety in OCD but can be calming for people with ASD, but both show repetition.

    • pyzjn
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      810 months ago

      I was just about to write this same thing… And that’s for people with high functioning ASD! I used to babysit a kid with ASD who was non-verbal with cognitive impairment. He will need care the rest of his life. To say there are no struggles with having ASD is just not true.

    • @balerion@beehaw.orgOP
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      10 months ago

      Regarding the latter part of your post, I often wondered if I had ASD before I found out I had ADHD. A later psych eval turned up negative for it.

      • @Parsnip8904@beehaw.org
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        310 months ago

        That might be the case. I learnt to mask growing up in a tough environment and it was really hard for me to get a diagnosis until a few years ago.

  • @bear_delune@beehaw.org
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    1310 months ago

    I like neurodivergent in the same way I like queer.

    It’s got a real punk feeling; I don’t into fit in to your normalised perception of reality, I don’t need to and I relish not fitting into this narrow definition of what it is to be.

    • @balerion@beehaw.orgOP
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      110 months ago

      I feel very differently about my ADHD and my queerness. My queerness is only a problem for me in that some of the people I share this world with want to eradicate me for it. There’s nothing wrong with it inherently. I like being queer, or at least I would if it didn’t result in so many people wanting to kill me.

      I don’t feel that way about my ADHD. If I could cure it, I would. The problem with my brain isn’t that other people don’t like the way it works, it’s that the way it works is actively detrimental to my goals, desires, and very existence. Social change could mitigate but not erase the problems I face due to having it.

      You have actually inadvertently highlighted one of the reasons I’m a little uneasy about the term “neurodivergence.” It feels less like a term for people who struggle than a fun club people can join to be rebellious, and I’m not sure how I feel about that. I’m okay with anyone who identifies as queer being allowed into the queer club, no questions asked. Pretty much the only requirement I have for the label “queer” is that you not be a (literal or figurative) cop. But it seems to me that the label “neurodivergent” takes a pre-existing label, “mentally ill,” and expands it to just… anyone who doesn’t like The Man keeping them down, I guess. I’m not sure I like that. I feel like maybe it dilutes the meaning of having a neurological difference a little.

      • @bear_delune@beehaw.org
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        410 months ago

        I think I disagree with how you’re defining neurodivergence and I certainly feel differently about my ADHD.

        ADHD is part of who I am, I really like how my brain functions and there are lots of benefits to thinking the way I do. The structure of society and to a large extend capitalism is what causes conflicts with my way of thinking. I am not wired to sit at a desk for 8 hours a day for the rest of my life. But that is what society demands it isn’t a problem with me

        Yes my ADHD can make some of my personal goals more difficult, but I can manage that through medication and strategies like anything else that may prevent me from achieving my goals.

        Lactose Intolerance prevents me from eating cheese, but I still want to eat cheese and am happy that I can take medication to do so; it’s a good thing that our economy isn’t built around a requirement to eat cheese though, treating those who can’t as lesser, other or wrong.

        I don’t like the term mentally ill because it implies there is a normality or standard. It creates a false dichotomy between the ill and the not ill. I don’t accept that.

        My brain is how it is, my ADHD is how it is, my depression is how it is. But it is my brain chemistry, it is unique to me, is is part of who I am physiologically and shapes who I am intellectually & spiritually.

        I am not ill. I simply do no fit in society’s false idea of normality. I diverge from that idea.

        • @balerion@beehaw.orgOP
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          210 months ago

          I mean no disrespect, but does the fact that you have to take medication to achieve your personal goals not suggest that something is wrong, or at least that you would still need those meds in a socialist utopia? I don’t think there’s anything wrong with taking meds, but I wish I didn’t have to take meds in order to achieve my goals.

          Lactose intolerance is actually perhaps a good analogy. Because, yes, life thankfully does not revolve around eating cheese, and you would certainly be much worse off if it did… but that doesn’t change the fact that eating cheese without your medication will make you sick. It’s still a problem you have to take meds for, even in a world where it’s relatively easy to avoid cheese.

          That’s basically how I feel my ADHD would be without capitalism. Less bad, sure, but still a net negative that requires treatment and makes my life harder.

          For more on why I consider my ADHD an illness, see my replies to Gaywallet later down the thread. It’s literally tried to kill me.

          • @bear_delune@beehaw.org
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            10 months ago

            I don’t think taking meds are a bad thing or a suggestion that something is wrong

            I brush my teeth with toothpaste to keep my mouth healthy, I wear shoes on my feet to keep them safe, people wear glasses to see and protect themselves from UV, I put on sunscreen to avoid cancer, I consume protein to help with the gains, I turn on the heater when I’m cold.

            Humans make accommodations for our fleshy meat sacks all the time, I don’t subscribe to the idea that one is “wrong” compared to other because it’s classified as medication; our fleshy meat sacks don’t care it’s called medication.

            I see taking Ritalin to help me focus no different that drinking coffee for the same purpose or using shampoo to stop my scalp getting all flakey.

            If you’re speaking from a personal perspective about your own experience with your mental health, I understand. I’m more replying to your assertion that ADHD shouldn’t be a “neurodivergence” thing

            I will say if your meds aren’t working for you, maybe try alternatives? I have loads of friends with ADHD and a bunch of us are on different scripts

            • @balerion@beehaw.orgOP
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              210 months ago

              I think the things you compared to meds are a little different in that most of what you listed is preventative, but point taken.

              I’m not even necessarily saying that nobody with ADHD should call themself neurodivergent, even. It’s your choice how you identify. It’s just that some of the ideas people take away from that really bother me. Some people seem to have concluded that because they don’t think their ADHD is a detriment, it must not be a detriment for anyone, and you’re only suffering from a disease of capitalism. I’ve heard far too many people with otherwise decent politics claim that psychiatry should be abolished because under socialism, no one will need treatment.

              My ADHD meds do work, I think. I’ve been on a couple kinds and these seem to work the best. There are certain things that none of the meds have made me not struggle with, though.

              • @bear_delune@beehaw.org
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                310 months ago

                Some people are gonna have bad takes, but I don’t think that undermines neurodivergence as an umbrella term/identity people may resonate with

  • @tangentism@beehaw.org
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    1210 months ago

    The term “neurodivergent” implies that there’s nothing wrong with you if you have ADHD–you’re just special and different.

    I think that’s definitely something you’ve inferred but is not necessary implied.

    For me, it perfectly describes a wide range of neurodivergent conditions such as ADHD, ASD, Dyslexia, Dyspraxia, et al. It describes a threshold that makes those different from neuro-diversity to where that person has a disorder that impacts their daily life.

    Conversely, I feel that the term ‘neurotypical’ implies that theres nothing wrong with that person when those who are NT, tend to not say what they mean, talk in riddles and hold some very strange assumed opinions about things as well as considering themselves to be normative, very much to the detriment of those they think are outside the parameters they set in their minds.

    “Mental illness” is really the only other option

    That would imply there is a cure, which there absolutely is not, and that there is a normative ‘well’ condition.

    • @balerion@beehaw.orgOP
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      410 months ago

      I don’t think that “illness” necessarily implies the existence of a cure. There are plenty of incurable illnesses.

      As for the normative “well” condition… I mean, there kind of is one, no? Not necessarily in relation to autism, but in relation to other conditions. Like, most people don’t try to kill themselves. If you do that, IMO you probably have an illness. That’s an extreme example, but you get the idea.

      Personally, I don’t feel like my ADHD is a neutral difference so much as an impairment. There are upsides, yes. But the downsides greatly outweigh them, and I don’t think that’s just a social thing. See my response to Gaywallet.

      My view isn’t more valid than that of any other person with ADHD, of course, but I feel like it should at least be taken into account.

      • @altair222@beehaw.org
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        410 months ago

        in here the difference between divergence and illness might be the essence of the traits having developed from birth itself (being part of the experience since existence) or having being developed through conscious life experiences.

          • @altair222@beehaw.org
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            410 months ago

            full disclosure, im still trying to figure it out after recently revealted to that having ocd counts as neurodivergency.

            • @balerion@beehaw.orgOP
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              210 months ago

              I’d say just about anything that is typically referred to as mental illness counts as neurodivergence. But I’m not an expert on the term or its usage.

              • @altair222@beehaw.org
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                410 months ago

                The difference definitely is in the nature of HOW divergent the brain structure is, how long it has existed for (since birth?) and if it could be altered for good to the point where it may be considered socially typical. Seems like there is no cure for OCD, just personal treatments.

  • @Captain_Pieces@beehaw.org
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    1010 months ago

    I’m fine with it, not necessarily because it’s accurate but because it works in contrast to the term neurotypical; ADHD and autism are clearly very different but they’re divergent because of what they’re not instead of what they are.

  • Cass.Forest
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    910 months ago

    The term “neurodivergent” implies that there’s nothing wrong with you if you have ADHD–you’re just special and different. But my ADHD is an illness that requires treatment.

    I think the term is perfectly valid when applied to autism, as autism is not, to the best of my knowledge, a mental illness so much as a difference in processing.

    As someone with both ADHD and autism, I want to touch on a perspective I think might be missing here (if others have commented similarly, excuse me for being a parrot). Both definitionally and experientially, autism and ADHD are both disabilities. Both come with strengths; autism makes me really good at learning patterns which helps with language learning, for example, and ADHD helps me have a large amount of focus however controlled on a specific topic. Yet, both are still disabling.

    Autistic people constantly are confused by allistic (read: not autistic) people in their communication style as well as the overreliance on things like body language to convey meaning. Autistic people also deal with sensory overload issues.

    ADHD people struggle to focus on tasks no matter how much they want to focus on them.

    I could include more examples, but that’s not the purpose of this comment. This could also be stemming from my autistic perspective where when I, specifically, use the word “neurodivergent,” I use it to mean a collection of disabilities such as autism, ADHD, and OCD, and that’s it. I simply view it as a label much like what the label of “queer” is today despite its troubled history.

    • @balerion@beehaw.orgOP
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      310 months ago

      That’s a fair perspective. However, the counterpoint I’ve often heard from autistic advocates is that autism is only a disability on allistic terms. If everyone communicated in a way autistic people understood, it wouldn’t be a disability. This could be completely wrong, of course, but it’s what I’ve heard argued.

      I don’t feel like this is the case with my variety of ADHD. I feel like even if the world tried to accommodate my ADHD traits, I’d still struggle quite a bit.

      • Cass.Forest
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        310 months ago

        While you do have a point that autism can be mitigated by society, in a way, so can ADHD. There isn’t just one model of disability. There still is that disconnect from allistics that autistics have, and some autistic people do in fact go to therapy to help mitigate issues with their autism (note here because I feel it’s important: a) autism is often comorbid with things like sleep disorders, OCD, depression, anxiety, etc and a lot of therapy for autistic people does revolve around that and b) I am absolutely not referring to ABA which is just conversion therapy).

        Also, when I mentioned me being autistic and only using neurodivergent to mean the collective of disabilities mentioned previously, I had also meant that it felt like to me that you were proscribing a meaning and/or an impact of the use of the term neurodivergent (and neurodivergence by proxy) that did not exist, one seated in prescriptivism. I don’t particularly see any negative impact to people using the term(s) either online or in real life and I’ve seen multiple people who are neurodivergent themselves use the term(s) to refer to the collective community of disabled people as just a label. While I can just offer up the “It’s just a label that we’re using to mean [insert thing here],” you could argue that I can’t do that because of the impact, but I have not seen such impact. I and some others on here have compared the term(s) to the word “queer” used for people in the LGBTQ+ community, although it has a trouble history as a slur but the community is reclaiming it and using it for their own despite its problematic past. But unlike the “queer” label (used to mean identities falling under the LGBTQ+ umbrella), the “neurodivergent” label (used to mean the collective of disabilities) doesn’t really have such a past. Nor does it have such an impact either.

        Because I’m itching to, I’ll go further with that queer-neurodivergent comparison. Not only is “queer” used as a catch-all for the LGBTQ+ community, it’s also a label itself used to refer to someone who doesn’t want to label themselves specifically but rather is just not-straight. Neurodivergent can be used in this way as well referring to some kind of disability along that spectrum but not necessarily identifying it in any way. Perhaps one doesn’t need to identify their disability because they know the symptoms and they have coping mechanisms to help them mitigate those symptoms. Perhaps they don’t have the resources to go narrow down that label into a more specific one. Or perhaps they don’t care.

        Really, as a TL;DR to this comment, the label isn’t doing any harm and, at least in my perspective, does nothing to belittle or minimize the struggles of the people in the ND community.

  • @Monthly_Vent@beehaw.org
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    710 months ago

    Lazy reply cause I’m tired, but could it be that your frustration lies on the neurodiversity movement instead of the term neurodivergent? A lot of your frustrations align with others’ criticisms of the neurodiversity movement, and I’m wondering if - because most people will conflate one with the other - you simply don’t consider yourself part of the neurodiversity movement instead?

    I’m asking this because a lot of people here are saying they’re two different things, but if you go on like reddit they will talk about it like they’re the same thing. I want to make it clear that, they’re not, but if they’re being talked about like they are in widespread culture then I can understand your frustration with a term that is associated with something you don’t feel a part of, even if that’s not actually what it means

    • @balerion@beehaw.orgOP
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      510 months ago

      Perhaps. My only real exposure to either has been through social media, so that’s what my thoughts are based on. But I do feel like even if you divorce it from the neurodiversity movement, the word “neurodivergent” is to “mentally ill” as “differently abled” is to “disabled”: an unhelpful and somewhat idealized version of a more appropriate term. Though that specifically applies to it regarding ADHD, not every difference in neurology, as I said.

      • @Monthly_Vent@beehaw.org
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        410 months ago

        Oooo okay that’s a very interesting connection. To be fair though, I do have my gripes about how people treat the word “mental illness”, in that a lot of people treat it like it’s some gross word to avoid, that there’s a stigma that nono you shouldn’t identify with that. (Personally I don’t think the word “mentally ill” should have as bad of a connotation as it does right now, but that’s just my opinion and I don’t expect others to think the same.)

        So I can see where you’re coming from with that. Even if you look at the initial, historical definition, it doesn’t negate the fact that the word neurodivergent is mainly used today as a way to say “different, but with a good connotation instead of a bad one”, and with a definition (vaguely) like that it can start to border on some toxic positivity. And I’m not sure if you’ve experienced something like this but I do find that I tend to think that people who put me on a pedestal or think of me as special or something don’t actually want who I actually am and all of them just think that I’m an exception to the actually negative stuff they hate. I’m not sure if I’m making any sense, uh tell me if this is confusing or not.

        I don’t have ADHD, nor autism, just… suspected some flavor of neurodivergence. I don’t feel confident in putting it into a specific thing until I get tested. But I do identify with being neurodivergent because there’s nothing else to call me really when I don’t know what I have yet. I don’t really identify with the neurodiversity movement though, but I appreciate their existence. Just wanna put that out there so you know my biases.

        I also realized you’re here to relate, not debate, so just a quick apology for fueling more debates. I don’t want to speak over your experiences, so I’ll ask instead, but do you mind if I give my own opinion about what “neurodivergent” means in relation to “mentally ill”?

        • @balerion@beehaw.orgOP
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          410 months ago

          I agree with you that “I have a mental illness” shouldn’t get a horrified reaction anymore than “I have an illness” does. It’s a shitty stigma we should try to break down.

          Yeah, the toxic positivity is a big part of what I’m referring to here. I’ve been deeply disappointed to hear my fellow leftists say things like, “Under socialism, you wouldn’t need your ADHD meds! You’re not disordered, you’re just living in a capitalist society that doesn’t value you!” Which, while it’s true that living in a capitalist society makes things much harder on people with ADHD, I don’t think it’s true that none of us would struggle or need meds under a better system.

          I totally understand why you identify with the term neurodivergent. It really does seem to be the best term that exists for people like you.

          Go ahead. I’m perfectly down to have a discussion.

  • Pigeon
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    10 months ago

    It’s not that we don’t think ADHD is a disability; it’s that we’re more convinced by the social modal of disability than the “there is just something fundamentally wrong with your brain” modal.

    For me, it causes me a LOT of problems, but I think most of those problems are looped around each other and exaggerated by society, and by the resulting secondary, problem-compounding problems that tend to pile up on top of adhd like depression, anxiety, cptsd, low self esteem, poor diet and sleep, and so on and on.

    I see it exactly the same way I see autism. Not fundamentally bad, even though it absolutely causes issues. Autistic people, for example, run into heaps and heaps of trouble because of the difficulty they have communicating with more neurotypical people. They might miss subtle social cues and be ostracized, or be very direct to the point of being seen as rude, and get ostracized or fired from jobs and so on.

    Meanwhile, off meds, I miss subtle social cues because I can’t always look at someone’s facial expressions and talk at the same time, and maybe there’s a song or an anxiety loop or a previous conversation topic stuck in my head. Or I can’t talk coherently because I think of a whole wordcloud of an answer all at once and can’t pick a linear route through it fast enough. It’s not so different, imo. The reasons are different but the resulting problem is the same, more or less.

    And both ADHD and autistic folks experience sensory issues.

    I suspect if there were meds that helped autistic folks the way meds can help many adhd folks, people would probably view it more the same way. Or if ADHD meds didn’t exist and we just had to exist without them.

    Even as it is, autism is so much more stigmatized than unmedicated ADHD. If ADHD is an illness, and autism is not an illness but is a stigmatized but normal brain difference, why do autistic folks usually seem to have the harder time in the world? Why is society’s shitty response to adhd “ignore it, it doesn’t exist”, while its shitty response for autism is to widely adopt a child abusive “therapy” invented by the guy who invented gay conversion “therapy”?

    I get tired of the people insisting we don’t have huge struggles or count for disability help, too. But tbh I also get sick of being told my brain is broken and that my adhd is an illness, because I don’t think mine is. I think it’s just different, albeit in an often very inconvenient way. But I see upsides to it too. I don’t think I would trade-in for a neurotypical brain, to be honest, despite all the problems. I like the creativity and the non-linearity of thought and the outside-the-box thinking and the hyperfocus adventures. I like my neurodivergent friends and the way our socialization works amongst each other. And I do have the meds, which help a lot with the problems.

    For my, and my own adhd, it’s both a positive neurodivergence and a disability. Not an either-or.

    All that said, I kinda don’t think “neurotypicals” per se actually exist, especially when accounting for the really dramatic plasticity of even adult brains, and the way experiences and thought patterns can and do continually change the structure of the human brain. And ADHD folks share symptoms with a lot of mental illnesses that aren’t considered neurodivergent normally.

    Talking about neurodivergence is helpful because it’s a more positive and less medicalized lens for looking at things, in my opinion. I like it. But the neurodivergent/neurotypical binary idea can also become a problem.

    Anyways. Different peoples’ experiences with adhd can differ a lot. If you see yours purely as medical disability, that’s a-okay with me, and you don’t have to describe yourself as neurodivergent, but I don’t see mine that way.

    Perhaps on all sides of this we could benefit from being more careful not to describe other peoples’ adhd in authoritative tones based on our own. Like, I agree not to call your adhd neurodivergent, and you agree not to call mine an illness? (Tbh I think you did a good job in your post of talking about yourself rather than talking for others.)

    /ramble I half-feel like deleting and might later but at this point I’ve committed too much so here you go I guess

    Edit: also there’s so much overlap between autism and adhd I’ve heard some talk, sometimes, about whether they might be best classified as two forms of the same thing. shrug The science is still sciencing on this one.

    • @balerion@beehaw.orgOP
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      You are, of course, allowed to feel that way. But I’d trade my brain for a normie brain in a heartbeat. I’d still be me, just capable of taking out the trash. I see no upsides to my ADHD that aren’t canceled out by the signifcant downsides.

      • Gaywallet (they/it)M
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        510 months ago

        Hopefully a community like this where people share their experiences can help you to discover the ways in which your brain is wonderful and beautiful. I have quite a few partners with ADHD and I’ve found the following traits of theirs rather admirable:

        • When hyperfocused on something, they have a drive I am envious of, being able to hone in on, complete, and do repeated tasks that I would find draining - there’s a level of perfectionism here that results in some amazing output but not something I would be able to focus on for as long or as intently as they did
        • Many of these individuals have SO MUCH energy! I say this as someone who a few weeks ago put in over 10k kcal in dancing on a weekend (sundown to sunup mostly nonstop). I find it incredibly invigorating to be around some of these people because they’re just so alive
        • The ability to be flexible and spontaneous is greatly appreciated. I’m someone who really likes to go with the flow and doesn’t have strong opinions on many decisions, and I find that I vibe incredibly well with people who have ADHD. The spontaneity seems to lend itself well to many of these folks being the shining star or center of a party
        • I never thought of myself as a creative individual because the way creativity is typically framed by society doesn’t match with my particular kind of neurodivergence, but spending time around ADHD people who are so dang creative has helped me to both tap into my own creativity as well as to reframe what I think of as creative
        • @balerion@beehaw.orgOP
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          510 months ago

          I’m not necessarily saying that ADHD doesn’t come with benefits. I’m just saying that, for me at least, my ADHD’s shittier aspects undermine the benefits it gives me.

          For example, I’m quite creative. But I don’t create much. Why? Executive dysfunction. I’ve wanted to be a writer my entire life. But I just don’t have the discipline (or executive function, call it what you want) to make it work. I’ve had the same novel idea for a long time. Wanna know how many words I’ve written? Zero. I’ve got a bunch of scattered, sometimes contradictory notes about the characters and setting, but I can’t make myself sit down and compile it all, let alone plot out a coherent story. I’ve tried writing without planning or outlining beforehand, and it works insofar as it gets words onto the paper, but at the end of it I’m left with a disaster that needs copious editing and no energy or interest in doing it.

          I wrote a couple novels when I was a teenager. They will never see the light of day because after writing them, I never got around to making them into something decent, and now I’m no longer interested in the projects.

          Even on meds, I just lack whatever it is normies have that makes them select a project or skill to work on and then follow through with it until they’re satisfied. The one and only creative thing I’ve ever been able to stick with is crochet, and even then, I took a six-month break from it and only picked it back up on a whim. And I only stick with crochet because it’s easy and mostly thoughtless; I won’t be able to do consistently anything that requires sustained mental effort, especially sustained mental effort.

          Admittedly, I probably could write more consistently if I had some kind of outside force making me, but where do I find that? I both need structure and avoid it at all costs because it feels so suffocating. I could maybe get an accountability buddy, though I hate having to be accountable, but I doubt that would be enough. I fear the hell out of failing out of school, but if my dad doesn’t sit down with me and help me study, I just won’t do it half the time. Even with the meds. Even knowing my future depends on it. Even as a 27-year-old adult. Even knowing my dad is paying good fucking money to send me to school. My brain simply hates doing things. Hell, I even procrastinate on things I love.

          What good is a writer who doesn’t write? I know I’m worth more than what I produce, yes. But still. The world could have my works, but it probably never will, and that depresses the hell out of me.

          And none of this is even touching on rejection-sensitive dysphoria. RSD makes normal life events like breakups and failure into soul-crushing catastrophes. I’ve tried repeatedly to kill myself in part because RSD ensures things that happened years ago still hurt just as sharply as they did in the moment. There are some things I will simply never get over, and I just have to learn to numb the pain enough to keep living. Call ADHD a gift all you like, but the truth is that a healthy person’s brain should not try to kill them over every bad thing that happens.

          • Gaywallet (they/it)M
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            410 months ago

            That sounds really tough, and I’m sorry you have to struggle with a system not designed with people like you in mind 💜

            • @balerion@beehaw.orgOP
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              510 months ago

              See, like, I’m not sure that’s the problem. I mean, sure, that’s definitely part of the problem for work and school shit. But what about shit I do on my own time? Even under fully automated luxury gay space communism, surely you’d have to do a lot of stuff on your own. And I just… can’t do certain things I’d like to do. I dream of a socialist utopia and a world where it’s okay to be different, but even in such a world, who would make me write? Someone clearly has to if it’s ever going to get done. Owning the means of production would not make me more productive on my own time.

              Needing help with stuff other people don’t doesn’t make you lesser, but it is something of a problem that has to be dealt with. I don’t like it. I’d rather be able to do everything someone without ADHD can do. I’m not sure there’s anything worthwhile I can do that a normal person couldn’t.

              And what of the RSD? Breakups and ends of friendship and failures are going to happen in any world. Yes, we could live in a less lonely world, or a world that doesn’t place so much value on productivity/succeeding at everything the first time, but frankly, I think if we all lived in close-knit communities the way a lot of my fellow leftists hope we will someday, that might make relationships ending even more painful because then you’d have to keep seeing the person at the monthly community meeting or whatever. Again, I don’t know that this is a social problem so much as a “my brain tries to murder me every time something bad happens” problem.

              I hope this doesn’t come across as me being upset with you. I’m not. I’m just trying to say that hey, for some of us at least, this whole ADHD thing is a real shit deal and having it treated as “just a difference” isn’t always helpful.

              • Gaywallet (they/it)M
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                410 months ago

                Apologies if anything I said minimized your experience or struggles. I’ve done my best to reread everything I’ve said and I’m struggling to see what I could do better in the future to ensure no one else feels that way when I talk with them. If you happen to have the mental energy to help explain to me what would have been a better way to interact with you, I’d really appreciate the input! But if you’re feeling drained or like I’m asking for too much from you don’t worry about it at all 😅

                • @balerion@beehaw.orgOP
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                  410 months ago

                  No, it’s okay. I don’t think you really did anything wrong, tbh. It’s as much my own issues as anything. I was just rubbed slightly wrong by the “system not designed for you” comment because I’ve heard too much of that from people who are flat-out anti- any any form of psychiatry or chemical treatment for ADHD. I have no idea if you hold similar beliefs, but my hackles go up a little when people start talking about “wrong world” stuff in regards to ADHD. It’s clearly true that the world is not designed for people like me, but for me at least, I’m not sure that’s where the problem ultimately lies, and some people I would like to consider allies say things that make me doubt their commitment to actually making things better for people like me, because psychiatric treatment is an integral part of that. Anti-psychiatry strikes me as a deeply ableist and idealized view of certain people with mental health conditions, and it’s often based on the naturalistic fallacy. That it’s so common among the leftist circles I run in bothers me immensely.

                  None of which has anything to do with you, necessarily, so I apologize for ranting at you a little. Again, you didn’t do anything wrong. I’m not upset. Just had a bit of a moment, is all.

          • @liminalDeluge@beehaw.org
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            18 months ago

            Admittedly, I probably could write more consistently if I had some kind of outside force making me, but where do I find that? I both need structure and avoid it at all costs because it feels so suffocating. I could maybe get an accountability buddy, though I hate having to be accountable, but I doubt that would be enough.

            I realize this is like 2 months later, but I read your posts and wanted to let you know about an online event/community called NaNoWriMo (National Novel Writing Month). It’s an annual event/challenge (traditionally in November) to write 50k (or your own goal) words in 1 month, with an explicit quantity > quality approach. I’m an aspiring writer in the same boat as you and participating in NaNoWriMo is the only thing that ever worked to get me putting words on paper, even during college. It provides some structure (daily or weekly goals) without being suffocating, and it adds a bit of a gamification/friendly self-competition element to the experience of writing, but the community itself is really laid-back, casual, and inclusive. There are also sometimes in-person writing get-togethers that can be very helpful to get that extra dopamine boost for writing. If you’ve already tried out this or something similar and it wasn’t for you, no biggie, I just wanted to highlight a potential writing aid that you/others reading might not have heard about.

    • DJDarrenM
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      410 months ago

      I kinda don’t think “neurotypicals” per se actually exist

      The more I learn about my own ADHD, and my wife’s ASD, the more convinced I am of this. There’s no such thing as “neurotypical”, just people that are better able to exist under society’s rules than others. Every one of us is the result of the experiences that have led us to where we are this moment in time, of all the neurones that have fired up and formed pathways to give us the skills and abilities and disabilities that make us who we are.

  • Bob Smith
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    710 months ago

    Honestly, I liked the term a lot when I heard it. With competition like ‘learning disability’ and ‘a bit on the spectrum’, it was like a breath of fresh air. If it makes people who don’t have ADHD less likely to bully kids at school, then it may be worth the inaccuracy.

    Plus, it hits the point that you can’t make broad assumptions about people with ADHD. Some people need medication/ therapy. Some people have coping strategies that reduce or eliminate the need for either. A lot of people are still trying to figure things out.

    • @balerion@beehaw.orgOP
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      310 months ago

      I understand why you’d feel that way, but I suspect it will become just another slur as time goes on, the way all terms that start off as neutral or positive terms for Being DifferentTM do. Wouldn’t be surprised if kids are calling one another neurodivergent as an insult in a generation or two.

  • @unsunny@beehaw.org
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    510 months ago

    Right out the gate, I don’t like the ‘superpower’ narratives or the ‘something we should get rid of entirely’ ones myself for both ADHD and autism, as someone with both.

    but that doesn’t mean ADHD isn’t ultimately a disorder that some people need to treat with medication and therapy.

    First off, I agree that therapy can be big. The difference with ADHD coping methods is that I’ve found the ones have therapists recommended me generally helpful or well-intentioned neutral, while the vast majority of the autism ‘coping methods’ I’ve gotten have ranged from unhelpful to legitimately harmful.

    Second is the medication point; some people don’t want or need medication, and that’s fine. Some others might not have a choice either way. I don’t have as many options there when it comes to ADHD because of anxiety and vice versa, so I might never have the option of having my ADHD mostly or completely treated through medication.

    I mostly feel like it’s up to the individual. I kind of see the term as a net neutral and quite situational. I’ve found reading through the replies here to be quite interesting!

  • @dxcz@beehaw.org
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    510 months ago

    the only reason ADHDers struggle is because society is set up wrong, but I don’t think that’s true, at least for me.

    I’d say you’re exceptional in that you’re very clear on your least favorite parts of ADHD and recognize that society can’t do much to help.

    For me, the H is particularly problematic as an office worker. And even as a uni student, I thought it was insane how many of my classmates were capable of just… spending all day in their rooms. Studying or gaming or whatever. Growing up, I always had eager companions for shaking off the restlessness and it never occurred to me that I was unusual.

    My recurring thought was “how are people expected to do this?” Which I think falls in line with the societal blame angle.

    Being unable to remember anything, unable to self-start, and hypersensitive to rejection would be massive problems in any world.

    But you pointed out some very real issues I have with myself and have my own coping mechanisms for. Going this route, I think the “wired different” interpretation pointed out by others makes the most sense.

    Generally, I don’t have an issue with it. “Ill” implies that I’ve ever had a “healthy” state and that I want to get back there. And that’s just not true.

    • @balerion@beehaw.orgOP
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      410 months ago

      That’s all very fair. I do have a minor quibble with your last point, though. Someone born with cystic fibrosis, for example, is ill and will always be ill (unless I’ve misunderstood something about the disease, which is possible, but you get my point). They will never “return” to a “healthy” state. And yet I think that ill is a fair thing to call them. You could make the same argument for conditions like ADHD.

      • @SturgiesYrFase@lemmy.ml
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        510 months ago

        The only current “cure” for CF, as far as I’m aware, is a lung transplant, which means a life spent on immuno-suppresants and eventual rejection and another transplant or death.

        I had a friend in my early 20s with CF, he was getting the fluid in his lungs pumped out prior to getting a transplant. They had to put him under for the procedure, and he just never woke up. He lived about 15 years longer than the doctors had said he would when he was 10.

        • @NormalPersonNumber3@lemmy.einval.net
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          310 months ago

          Ah man, I’m sorry about your friend.

          I have a friend with CF, there have been some good advancements in medications recently, so it’s at least more treatable than it used to be. He has made it to his 30’s so far, but I’m still worried for him.

  • Sass
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    510 months ago

    I hear you and get where you are coming from. The language is inadequate.

    My neurodivergence is both genetic and environmental. Dyslexia runs in my family. However, those of us that also suffered from Childhood Emotional Neglect developed ADHD. And those of us that were additionally scapegoated are diagnosably on the spectrum. The pattern runs through 4 generations in 26 nuclear families.

    No amount of punishment or socialization can eradicate the dyslexia. The medication is for dealing with the effects of a lifetime of being punished for something beyond my control.