• SoleInvictus
    link
    fedilink
    arrow-up
    11
    ·
    3 days ago

    Look into Ehlers - Danlos Syndrome, a connective tissue disorder. Sufferers describe similar symptoms.

    • Paper_Phrog@lemmy.world
      link
      fedilink
      arrow-up
      2
      ·
      3 days ago

      Yes, my mother has this and this constantly happens. I also had it a few times. Not a good time.

      Doctors don’t know this syndrome often, how do you know it if I may ask?

      • SoleInvictus
        link
        fedilink
        arrow-up
        4
        ·
        edit-2
        3 days ago

        I have it, the hypermobile type (hEDS)

        Upside: reduced likelihood of osteoarthritis

        Downside: all the pain, doctors think you’re crazy

        • Paper_Phrog@lemmy.world
          link
          fedilink
          arrow-up
          1
          ·
          2 days ago

          Thank you for sharing. I think I might have some symptoms, but definitely not all. The knees though :x

          Do you manage without pain meds? My mom cannot unfortunately.